Article on CFIDS, CFS, Lyme Disease Available
We would like to take this moment to thank for contributing this article: Article on CFIDS, CFS, Lyme Disease Available. Anyone that contributes is a welcome addition to StartingAMedicalPractice.com!This is a test, By Matthew Chute"So what do you have?" "OH you're feeling a bit tired and run down huh?" "How about taking some vitamin C?" "Chronic Fatigue? Oh ya, I take naps every Friday after work, I know what its like, I'm tired too…"10+ years of having CFIDS (Chronic Fatigue Immune Deficiency Syndrome) has been a test in patients. Being a patient of many Doctors, being patient with my friends (the ones I have left), being patient with the inpatients of my family, patiently waiting to amass enough strength, mental clarity and motivational energy to do what I have to do, and most of all, waiting for a discovery that will lift the fog forever…and patiently waiting for a good explanation that makes the politics of our illness make sense.Things are getting better for the CFIDS diagnosis. In that, when you tell someone you have CFIDS, many more understand. Unfortunately, so many of us either have it or know someone who does. I haven't run into the dismissive "it's-all-in-your-head" for a while.
The tireless efforts of organizations like the CFIDS Association are working. Since nobody ever told me exactly what was affecting me I never stopped searching for a better answer to the diagnosis question. Who wants an illness with no cause, treatment or cure? I also wanted an answer so others would understand me too. I wanted more compassion because my life was ruined, but; to others, I looked fine and could act fine for periods of time. But most of all I wanted my life back and knew that if I had a good diagnosis I could beat this thing.
I kept looking for the best answer to the question: What happened to my life?When asked, now I answer, "I have CFIDS/Lyme disease." My particular symptoms are known as CFIDS: brain fog-mental confusion, fatigue unabated by rest, motivational, emotional problems, non-refreshing sleep, and chemical sensitivities among others, I can say that with confidence because I have traced the cause of those symptoms to Lyme through an exhaustive search for good tests. Lyme disease is caused by the Borrelia burgdorferi spirochete. Spirochetes are some of the most difficult microorganisms for our immune systems to deal with. They live inside cells and tissue (intracellular). They are zoonotic (crosses species barriers).
They are able to change phase (pleomorphic) from the normal cell wall, to cell wall deficient and to cystic forms that can lay dormant for years. Another world-wide spirochete problem was (is?) syphilis, a disease known as the great imitator. Like Lyme, its symptoms are varied. So many medical symptoms seemed unrelated but were all caused by the same infectious agent (sound familiar?). The big question is: What would you and your Doctor do to rule out Lyme disease? It should always be one of the first things ruled out because just about every single symptom of CFIDS is found in the Lyme community.
The CFIDS Association/Chronicle and the rest of the CFS patient community is under no threat if it's discovered that many of us have Lyme Disease. Another term "Borelleosis" is used as well. Diagnosing CFIDS has always been a diagnosis of exclusion. There are so many other things that you can catch or that can happen to you that cause CFIDS symptoms including chemical exposure, frontal brain injury, Brucellosis mycoplasma and a host of other medical conditions. The fact is that we have a constellation of symptoms that we call "CFIDS" and until each patient has a definitive cause, it is still just a constellation of symptoms, There is a growing consensus that many other illnesses are caused or related to Lyme including: Fibromyalgia, ALS, Lupis.
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